What is TD?

Tardive dyskinesia (TD) is an involuntary movement disorder that is characterized by uncontrollable, abnormal, and repetitive movements of the face, torso, and/or other body parts. TD is associated with prolonged use of certain mental health medicines (antipsychotics) that can be used to treat bipolar disorder, depression, schizophrenia, and schizoaffective disorder. TD affects approximately 600,000 people in the U.S., and approximately 70%, or 7 out of 10 people living with TD, have not yet been diagnosed.

Now in its sixth year, TD Awareness Week (May 1-7), which takes place during Mental Health Awareness Month, encourages the mental health and broader communities to learn about TD, including how to recognize symptoms, understand the burden of the condition, and the importance of speaking with a healthcare provider if they or someone they know may be experiencing bothersome uncontrolled movements. As the reach for TD Awareness Week continues to grow each year, you’ll be joining other advocates from across the country who are bringing awareness to TD.

Neurocrine Biosciences, Inc. is dedicated to providing education on TD . More information is available on Neurocrine.com/TD-Awareness/, and resources can be accessed at TalkAboutTD.com. These resources can help people understand TD, request support, and have a conversation with their healthcare provider about ways to manage TD, including treatment options. For more information, follow and join the conversation online by sharing #TDAwarenessWeek.

Thank you to Lynn Long for sharing her story during Tardive Dyskinesia (TD) Awareness Week/MHAM. #MoreThanEnough

I've been on bipolar-related medications for over 30 years, and experience trembles and tremors so severe that I cannot hold a utensil or pen. I was officially diagnosed with TD just two months ago, and the FDA just approved a new medication I started the last week in April.

In addition to my mental illness, TD has caused me to experience great anxiety, embarrassment, isolation, and fear because I didn't know what was wrong with me. That's why I'm sharing my story …. I am eager to speak about my experiences so others who suffer from this devastating and debilitating illness know they are not alone.

My plans are to see a neurologist in the near future to learn new tips to manage TD, along with my medication and counseling. It's my honor to share my story so that others aren't ashamed, nor keep it a secret as I did for many years. I came to find recovery and wellness, and found a profound sense of joy, happiness, hope and purpose in helping others.

Linda (Lynn) Long, former NAMI IL Connections facilitator (NAMI Will Grundy), speaker for graduating NAMI IL Family-to-Family groups; part of NAMI Will-Grundy's "meet our members" video series. Lynn is a resident of New Lenox, IL, and had an active career in the dentistry for over 35 years. She's also taught dance and fitness classes.